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ehlers-danlos syndromes

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661 Pins
 7w
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Terry Dietrich
“Ehlers-Danlos Syndromes can be debilitating and challenging to manage. Various types of providers may be needed to assist in caring for those with EDS such as: primary care provider, geneticist, rheumatologist, surgeon, vascular surgeon, physical therapist, mental health provider, cardiologist,…” #Awareness4EDS #EDS #EhlersDanlosSyndromes
No two zebras have the same pattern of stripes.
"Why the Zebra? When doctors are in training they are taught: when you hear the sound of hooves, think horses, not zebras. A zebra in medical terms is a rare condition, but often people forget that zebras do exist!” #EDS #EhlersDanlosSyndromes

Why a zebra? 🦓

10 Pins
“Hypermobility of Joints” infographic 6/22/2015 ”Often symptoms in organs other than the joint structures are present as well. The same symptoms with a higher severity, involving recurrent joint dislocations, may often lead to a diagnosis of Hypermobility Type Ehlers-Danlos Syndrome (HEDS), previous called EDS type 3.” #EDS #EhlersDanlosSyndromes #HypermobilitySyndromeIndia

What is EDS? 🦓

40 Pins
“Ehlers Danlos Syndrome” infographic #EhlersDanlosSyndrome
“Ehlers-Danlos Syndromes Signs & Symptoms: There is a wide range of symptoms that affect connective tissues throughout the entire body: hypermobile joints; easy bruising; risk of organ rupture; risk of aneurysm/dissection; dislocation/subluxation; soft velvety/stretchy skin; gastrointestinal issues; poor wound healing; chronic pain; fatigue; TMJ; early osteoarthritis and osteoporosis; early onset varicose veins; translucent skin with visible underlying veins...” #EDS #EhlersDanlosSyndromes
”Diagnosis Vascular Ehlers-Danlos Syndrome: dissection; dislocation; thin, translucent skin; recurrent hernias; clubfoot; arterial rupture; easy bruising; pneumothorax; aneurysm; early onset varicose veins; joint hypermobility; bowel perforation; fragile tissues; thin lips, small chin, thin nose, large eyes, lobeless ears...” #Awareness4EDS #EDS #EhlersDanlosSyndromes #VascularEhlersDanlosSyndromes

EDS at a glance

32 Pins
Craniocervical Instability & EDS: Know the Facts

signs, symptoms, & comorbidities

42 Pins
A-Z of EDS
A-Z of EDS - Adrenaline

A-Z of EDS

28 Pins
EDS Fact 2 “There are various types of EDS... Many of the symptoms overlap between each type and it may be difficult to differentiate one from the other. Some people may have mild symptoms whereas others may have a disabling conditions.” #EDS #EhlersDanlosSyndrome

EDS facts 🦓

71 Pins
20 Products People With Ehlers-Danlos Syndrome Swear By | The Mighty
EDS Random Fact 1 “Ehlers Danlos Syndrome is a group of inherited disorders that affect our skin, joints, blood vessel walls, and pretty much all of our bodies structure. Yet, we all look completely normal.“ #BuzzFeed #EDS #EhlersDanlosSyndrome
EDS Random Fact 2 “We are probably the most flexible/ bendy people you’ll ever meet. However, we suffer from (awful) chronic joint pain since very early in life. Learning to deal with this makes our souls as strong as our joints are weak.” #BuzzFeed #EDS #EhlersDanlosSyndrome

EDS random facts 🦓

32 Pins
Ehlers-Danlos Fact 9 “Chronic fatigue contributes in a big way to impaired quality of life in EDS. Some of the conditions which cause or worsen fatigue in EDS include sleep disorder, chronic pain, and trouble regulating the cardiovascular system. A lot more needs to be discovered in chronic fatigue and how it’s caused in EDS.” #ChronicFatigue #EDS #TheEhlersDanlosSociety

more facts 🦓

24 Pins

EDS myths & misconceptions 🦓

8 Pins

EDS firsthand 🦓

98 Pins
10 Photos of Little-Known Symptoms of Ehlers-Danlos Syndrome | The Mighty

living with EDS 🦓

73 Pins

EDS in children

14 Pins
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”May is Ehlers-Danlos Syndrome awareness month.” Autoimmune Disorder
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”May is Ehlers-Danlos Syndrome awareness month.”
”People with Hypermobility Syndrome often sit in unusual body postures and often fidget a lot!” “Extra adrenalin can be the cause of all the fidgeting, and it is often misdiagnosed.” Anonymous #EDS #EhlersDanlosSyndrome #HypermobilitySyndrome Ehlers Danlos Syndrome Types, Adrenal Fatigue
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Adrenal Fatigue
”People with Hypermobility Syndrome often sit in unusual body postures and often fidget a lot!” “Extra adrenalin can be the cause of all the fidgeting, and it is often misdiagnosed.” Anonymous #EDS #EhlersDanlosSyndrome #HypermobilitySyndrome
”People with Hypermobility Syndrome can have problems of sensing where they are in space and therefore have a poor sense of proprioception.” #EDS #EhlersDanlosSyndrome #HypermobilitySyndrome
”People with Hypermobility Syndrome can have problems of sensing where they are in space and therefore have a poor sense of proprioception.” #EDS #EhlersDanlosSyndrome #HypermobilitySyndrome
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