Sharing tips and strategies for living well!
Did you know that there is research that connects Hypermobile Ehlers-Danlos Syndrome (hEDS) to other conditions? Do you suspect that your Ehlers-Danlos Syndrome is contributing to other conditions? Are you currently being treated for any of these conditions? Medical Advice Disclaimer: Content on this page is for educational purposes only and may not pertain to your own individual situation. See your doctor to discuss diagnosis and treatment options specific to you. #EhlersDanlos #Pots
BULLETINS | Hypermobility MD
Did you know that we recently published two new bulletins?👀 🔬Dive into the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) as we debunk common misconceptions and answer frequently asked questions. Tap the link within this post to find insightful information, valuable resources, and gain a deeper understanding of these conditions.
Bendy Bodies with the Hypermobility MD
Have you had surgery and have Ehlers-Danlos Syndrome (EDS)? What was your experience like? Preparing for surgery can be especially challenging if you have Ehlers-Danlos Syndrome (EDS). Taking specific precautions can help ensure optimal outcomes. Check out our lists of Do's and Don'ts when preparing for surgery! Many of these apply to those with hypermobility spectrum disorders (HSD) as well. #Hypermobility #hEDS #EhlersDanlos #LocalAnesthetic #Surgery #SurgeryRecovery #SurgeryLife
Do you have difficulty advocating for yourself? The current healthcare system is not adequately prepared to treat the complex medical issues that stem from chronic illnesses. But there are ways in which you can get the help and care you deserve. Share some ways you advocate for yourself in the comments! #Hypermobility #hEDS #EhlersDanlos #ChronicPain #ChronicIllness #InvisibleDisease #JointPain #HealthAdvocate
Do you have joint hypermobility AND suffer from a possible mast cell disorder? What is a mast cell disorder? A condition whereby mast cells become 'triggered' easily and release mediators resulting in three things: 1. an allergic-like picture 2. increased inflammation 3. abnormal tissue growth #mastcells #histamine #histamineintolerance #mastcelldisease #hypermobility #eds #chronicpain #chronicillness #heds
Have experiences in life led you to doubt your pain? This is unfortunately a common experience in the chronic pain community. Don't forget that you are the only one that can truly understand exactly what you're going through. Never doubt your pain. The Hypermobility MD team believes you. Save this post for future reference! #Doubt #ChronicPain #ChronicIllness #JointPain #EhlersDanlos #BackPain #ChronicallyIll
Hope for Hypermobility: Part 1—An Integrative Approach to... : Topics in Pain Management
Are you struggling to get care for Ehlers-Danlos Syndrome, hypermobility spectrum disorder or another condition with symptomatic joint hypermobility (SJH)? "Hope for Hypermobility: Part 1-An Integrative Approach to Treating Symptomatic Joint Hypermobility" was just published. Do you know someone in need of continuing medical education (CME) credits? Make sure to share this post with them! Tap the link to learn more! #JointHypermobility #ChronicPain #EhlersDanlos #hEDS #HSD
Do you suffer from brain fog? Brain fog is a term used to describe a wide range of symptoms that affect a person's ability to think and concentrate. The causes of cognitive dysfunction (brain fog) vary greatly and include: •Chronic Illnesses •Inflammation •Nutritional Deficiencies •Stress and Anxiety •Sleep Problems •Medication Side Effects How do you manage your brain fog? Share with us below. #Hypermobile #EhlersDanlos #Bendy #Hypermobility #ChronicPain #ChronicFatigue #LifeWithPain
From Self-Doubt to Self-Assurance: Navigating Imposter Syndrome in Chronic Illness
Have feelings of doubt crept in because of your invisible or dynamic illnesses? When our symptoms aren't visible, it's easy to feel like we're making them up or that they're not "real" enough to deserve support. We invited Taylor Wiesmann, a fellow EDSer, to shed some insight into the relationship between her chronic illness and Imposter Syndrome. Tap this pin to read her outstanding guest blog post, "From SElf-Doubt to Self-Assurance: Navigating Imposter Syndrome in Chronic Illness".
Bendy Bodies with the Hypermobility MD
Did you know that neurodiversity is linked to joint hypermobility? Neurodivergent individuals have brains that function differently from what is considered typical or "neurotypical." It includes conditions such as autism, ADHD, dyslexia, and others. Visit bendybodies.org to learn more. #Neurodiversity #ADHD #Awareness #ADHDStruggles #AutismAwareness #AutismParent #Introvert #SocialAnxiety #Anxiety
Hypermobile? Five principles to make physical therapy work for you!
Have you tried physical therapy to improve your joint instability? Did you experience improvement? Exacerbation? Neither positive nor negative change? Here are some fabulous Do's and Dont's from physical therapist and hypermobility specialist, @HypermobilityDoctor. #Hypermobility #EhlersDanlos #ChronicPain #ChronicIllness
Informed Consent: Podcasts and Social Support
Living with a chronic illness can be challenging, but podcasts may offer a new form of social support. Researchers at DePauw University are conducting a survey to explore how podcasts can help those with chronic illness connect, feel supported, and empowered. Link to the survey! https://docs.google.com/forms/d/e/1FAIpQLSfrkhyR4cRW9DEB8O4Pvbs9kWuQIlCtZ3gs31J6E55tMoquxg/viewform
If a physician mentions that there are no treatments for Ehlers-Danlos syndrome they most likely mean that they do not know how to help you. While it is true that there are no FDA-approved treatments for hypermobility spectrum disorders (HSD) or Ehlers-Danlos syndromes (EDS), there are many different things that can be done to manage symptoms. I have hEDS and formulated a treatment plan for myself and others with symptomatic joint hypermobility (SJH). Tap the link in our bio to learn more.
Are you one of the 50 million adults in the USA affected by chronic pain? The US Pain Foundation recently conducted a study of 2,378 people about chronic pain. How does chronic pain affect you? #ChronicPainAwareness #ChronicPain #hEDS #EhlersDanlos #JointPain
Did you feel supported in your school environment? Many of those in the chronic illness community struggle or have struggled in the past. Whether they are punished due to their chronic absence, lack of outside tutoring, or bullying at the hands of their peers, school can be incredibly difficult. Did your chronic illnesses have an impact on your education? #ChronicIllness #Education #School #ChronicLife #LifeWithPain